User guide AS Connect

AS Connect

Why?
AS Connect is an application designed to connect
people who have a child a ected by Angelman
syndrome in order to:






a irm that my child exists and is part of a
global community a ected by this genetic
condition;
encourage exchanges between caregivers
around the world and help reduce feelings of
isolation;
extract statistical insights about the
community, such as the number of people
a ected by Angelman syndrome, distribution

by genotype, age distribution, and prevalence
by country.
Who is it for?
It is intended exclusively for caregivers of children
a ected by Angelman syndrome and is based on the
explicit collection of the caregiver’s consent regarding
the purposes described above.
Home page

The home page is a web application accessible at the
following address:
https://www.angelmananalytics.org/app
Create an account
From the home page, select “Create an account”.

A form appears allowing you to enter:
-

-

on the one hand, the gender, first name and
last name of the person a ected by the
syndrome, their date of birth, genotype, and a
photo of the person;
on the other hand, the authentication details:
email address, password, a security question
and its answer, to be used later in case the
password is forgotten.

Finally, the privacy policy is displayed with a checkbox
to collect the user’s consent.
Another checkbox allows the user to receive
information related to Angelman syndrome.
Important: the ASConnect application requires
approval for the use of geolocation, as it
automatically identifies the city of residence using
GPS coordinates.
Forgot password
From the home page, select “Forgot your password?”.

Using your email address and the correct answer to
the security question, you will be able to reset your
password.

Sign in

Simply enter the email address and password
provided in the previous sections.
You also have the option to choose the language: the
application is currently available in French, English,
German, Portuguese, Spanish, Polish, and Italian.
Connect with the community

You are taken to a map showing, by country, the
people referenced in the application.
You can zoom in and click on a country to drill down
to city-level detail for people a ected by Angelman
syndrome.

In the example above, UK has been selected and a
number of cities with 148 referenced people are
displayed.
The number of people is shown, and the size of each
bubble is proportional to this figure.
You can zoom in and click on a city to identify
individuals and get in touch with them.

In the example above, Rubgy has been selected, and
you can see the 3 people referenced.
You can click on a person’s photo to view it in full
screen. You can also see their status: whether they
are currently online (green indicator) or o line (red
indicator).
You have the option to start a conversation by sending
a message.

You can reset the map using the button on the right.
You can also return to the country-level view
using the button on the left.

Filters for the displayed data
This feature allows the map to be filtered according to
di erent criteria:


a distance from your city;



displaying only people who are currently
online;



selecting countries;



selecting genotypes;



selecting age ranges.

You then simply apply the filters for the map to reflect
the selected criteria.
This feature, for example, makes it possible to find
people similar to your child and to start conversations
in order to share experiences.

Tab-based navigation

Within the application, you can navigate between
three options: the map view, the tabular view, and
ongoing conversations.
Tabular view

You can view all the people referenced in the
application and filter the information using the same
filters described above, sort the columns, click on a
photo to view it in full size, and see each person’s
status.
By clicking on a row or using the action button, you
can start a conversation with a person.

My chats

The “My chats” page allows you to view conversation
threads with other people.
You can see each person’s status and the last
message, marked with a grey check if it has not been
read or a blue check if it has been read.
You can click on a conversation to view the full
discussion thread.

Very simply, you can send messages, add emojis,
delete or edit a message, or reply to another person’s
message by long-pressing on it.
You always have the checkmark system to see
whether messages have been read by the other
person, and you can also view the date and time in
your conversation thread.
Finally, you have the option to leave a conversation, in
which case all messages from that conversation will
no longer be visible to the other participant, using the
following button.
My Groups
You may be part of groups because someone has
selected an audience that includes you (for example:
all people who have a child aged 7 to 12 with a
deletion genotype).
You also have the option to create a group on a
specific topic and choose your audience using the +
button.
Then, by clicking on the group, you can view the
conversation and exchange messages, add emojis,
reply to comments, and see the participants by
clicking on their avatar.

Menu
Access to the menu is done by clicking on the button.

This provides access to the following options:

“My profile” allows you to modify your login
information: the visible photo, first and last name,
genotype, and authentication details.
Important: “Locate me” allows you to change the city
where you are located, which can be useful, for
example, when you are on vacation.

“Contact us” opens a form allowing you to
communicate by email with the person responsible
for the application.
“Privacy policy” allows you to review the policy
associated with the application, just as during
account creation.

In this section, you have the option to exercise your
right to be forgotten, which will result in the deletion
of your profile and all associated conversations.
Log out allows you to sign out of the application.
Version makes it possible to identify the current
version of the application and the person responsible
for it. (https://www.angelmananalytics.org)
Data security
All data is encrypted during storage and transmission.
Passwords are hashed in accordance with security
best practices, and all communications with the
service take place over HTTPS.